The online event by Human Health Project, “How Shared Patient Information is Transforming Healthcare,” which was held on March 19, 2021, provided significant information in regard to Shared Patient Information. As discussed in this event, Shared Patient Information includes types of data derived from sources outside of controlled trials. Shared Patient Information can be collected from electronic health records, insurance claims, disease registries, and surveys. The data can be obtained from a broad patient population. 

In this event, panelist Jaime Sanders, who has been living with migraines for an extended period of time, also discussed relevant points regarding her own story and Shared Patient Information. Jaime has experienced severe migraines for much of her life, and was not responsive to certain treatments such as antidepressants, seizure medications, and blood pressure medications. Jaime noted that alternative therapies, including ice and heat therapies, acupuncture, and acupressure have been effective in reducing her migraine headaches. As Jaime also elaborated, Shared Patient Information can be effective in that it can also help identify how marginalized groups live with migraine headaches, as these groups are often underrepresented in clinical trials. 

Another panelist in this event, Lizbeth Chroman, also mentioned that she suffered from frequent migraines. Lizbeth mentioned that she used both alternative therapies, as well as over the counter medication, to help in reducing the frequency and severity of her migraine headaches. Lizbeth had positive feedback in regard to the HHP Shared Patient Information on migraine headaches in relation to her own illness. Lizbeth referred to the over the counter treatments, as listed as a part of the HHP Shared Patient Information for migraine headaches, which she mentioned was useful information to her and could be relevant to other patients as well. In addition, Lizbeth also believed that HHP Shared Patient Information is effective in creating a strong community for individuals living with migraine headaches, where health information can be effectively shared. As Lizbeth stated in regard to the HHP Shared Patient Information, “It makes you realize that you’re not alone on this journey. You’re part of a larger community that’s suffering but trying to help each other.”

In addition, a final panelist, Kelly Logan, also noted that she had recurring migraines throughout much of her life. Similarly to the first panelist, Jaime Sanders, Kelly mentioned that alternative therapies were an effective treatment in reducing her migraine headaches, including acupuncture and acupressure. Kelly also noted that Shared Patient Information has significance. Understanding and sharing how other patients live with similar symptoms, as Kelly noted, can be helpful to her personal illness. 

Ultimately, the positive feedback that the panelists gave regarding Shared Patient Information, in relation to Human Health Project as well as generally, emphasizes the significance that it can have in helping a wide range of patients with their healthcare needs.   

More information about the event “How Shared Patient Information is Transforming Healthcare” can be found here: https://sqa.humanhealthproject.org/events/